Is the healthcare experience keeping genomic medicine out of reach?
Genomic healthcare disparity cycle and importance of diversity in genetic research
In this episode, Megan Johnson discusses the disparities in genomic healthcare, focusing on how healthcare experiences influence participation and trust, especially among underrepresented groups. She explores the genomic healthcare disparity cycle, the importance of diversity in genetic research, and strategies to improve patient engagement and understanding.
Key words: genomic healthcare disparities, underrepresented groups, healthcare experience, genetic research, trust in medicine, diversity in genomics, patient engagement, healthcare access, genetic counseling, health equity
Key Topics:
The genomic healthcare disparity cycle and its impact
Importance of diversity and inclusion in genetic research
Role of healthcare providers in improving patient trust and understanding
The influence of social determinants on access to genomic healthcare
The potential of community-based research and primary care integration
Steps to address systemic barriers and improve health equity
Guest bio:
Megan is a clinical genetic counselor who helps patients and their families understand and make decisions around complex genetic information. Her research into how healthcare experiences shape genomic healthcare disparities grew out of a long-standing commitment to equity, one that took root growing up in a rural community with limited access to specialized care. She's dedicated to making genetic counseling accessible and meaningful for patients of all ages.
Resources related to today’s topic:
Johnson, M.D., Hite, A., Richmond, J. et al. Healthcare experiences and the cycle of genomic healthcare disparities: A cross-sectional study utilizing the ‘All of Us’ research program. J Community Genet 17, 88 (2026). https://doi.org/10.1007/s12687-026-00921-8
All of Us Research Program from the National Institutes of Health
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