What is Wolfram syndrome? with It Happened to Me

What is Wolfram syndrome? Rare Disease podcast feature

This week on All Access DNA, we’re sharing an important conversation from another Gene Pool Media podcast: It Happened to Me: A Rare Disease and Medical Challenges Podcast, hosted by patient advocates Cathy Gildenhorn and Beth Glassman.

In this episode, Beth interviews her co-host Cathy about her journey with Wolfram Syndrome—a rare genetic condition. Cathy shares her diagnostic journey, symptoms, treatment options, and the latest research, including the potential of CRISPR.

Cathy has devoted her life to helping others, serving on local, national, and international boards, as well as the U.S. Holocaust Memorial Council. Today, she channels that same passion into creating a supportive space for the medically challenged community—reminding us all: “You are not alone.”

Key Takeaways:

• What is Wolfram Syndrome

• Cathy’s diagnostic odyssey and personal story

• Current treatments and research progress

• How Cathy is processing her diagnosis and inspiring others

Any inquiries on the podcast can be sent to AllAccessDNA@gmail.com

Note that this podcast is for entertainment and education and is not intended to be a substitute for professional medical advice. Please consult your physician with any questions you may have regarding your health.

The All Access DNA team includes: host, producer and editor Kate Wilson. The logo is designed by Designs by NKJ. Our Social Media Lead is Casey Lepley.