How does grief inspire genetic action and awareness?
Grief, genetics, and accessible testing.
Grief, genetics, and accessible testing. In this episode, Matt Goldstein shares his personal journey through grief after the loss of his daughter, Javi, who was diagnosed with Tay-Sachs disease. He discusses the impact of this experience on his career, leading him to focus on preventive genetics and the mission of JScreen, an organization dedicated to providing genetic testing and support. We explore the importance of preconception carrier screening, the advancements in genetic technology, and the emotional aspects of navigating grief and loss. Matt emphasizes the power of genetics in preventing diseases and the support systems available for families.
Key Takeaways:
Genetic testing technology has advanced significantly in recent years.
Faith and rituals can help navigate the pain of loss.
Genetic counselors play a crucial role in the testing process.
JScreen provides education and support for genetic testing and aims to make genetic testing accessible to all families.
Dr. Matt Goldstein, MD, PhD, is a dedicated physician-scientist and entrepreneur with a passion for advancing genetic research. As CEO of jscreen, he focuses on providing accessible, life-saving genetic testing to empower individuals with critical health insights. With extensive experience in biotech, Dr. Goldstein has led major initiatives, including founding and guiding companies like Tango Therapeutics and Neon Therapeutics through pivotal clinical developments and strategic partnerships.
A graduate of Stanford University's MD/PhD program, he completed his clinical training at Harvard Medical School. Driven by both professional and personal experiences, including the loss of his eldest daughter, Havi, to Tay-Sachs disease, Dr. Goldstein is deeply committed to jscreen's mission of proactive health management.
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Here are more resources related to today’s topic:
J Screen website: https://www.jscreen.org/
Matt Goldstein’s LinkedIn: https://www.linkedin.com/in/matthew-g-27983942/
J Screen website: https://www.instagram.com/getjscreened/
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Note that this podcast is for entertainment and education and is not intended to be a substitute for professional medical advice. Please consult your physician with any questions you may have regarding your health.
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