Heart health & Connective Tissue: What is Marfan syndrome?
An inherited condition that affects connective tissue- which supports bones, muscles, organs, & blood vessels.
Maya Brown-Zimmerman shares her personal journey with Marfan syndrome, the importance of early diagnosis, and navigating life with a connective tissue disorder. She discusses medical management, genetic testing, community support, and her work in genetic counseling.
Key words: Marfan syndrome, genetic counseling, connective tissue disorder, medical management, genetic testing, patient advocacy, community support, rare diseases
Key Topics:
Diagnosis and clinical signs of Marfan syndrome
Genetic testing and its role in diagnosis
Managing health and lifestyle with Marfan syndrome
Guest bio:
Maya Brown-Zimmerman is a cardio genetic counselor living with Marfan syndrome, and the mother of four kids. She is passionate about making genetic information accessible. She's volunteered with the Marfan Foundation since she was a teenager and is currently an advisor to both their Professional Advisory Board and Board of Directors.
Resources related to today’s topic:
Findageneticcounselor.org to search for a genetic counselor near you
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